Hereditary cancer is not the same as spontaneous cancer, nor are the issues surrounding it. If you live in a family affected by risky genes, it is likely you have lost one or more loved ones to hereditary cancer. You may fear for your own life and for the lives of loved ones, especially children. You may have experienced the anxiety of regular cancer screenings, the trauma of multiple surgeries, fertility loss or suffered side-effects from cancer and preventative treatments. We can help with up-to-date information and support from someone who has been there.
One of the things we hear most often is how relieved prospective or confirmed risky gene carriers are to find out there are others like them because they have felt incredibly isolated. Large social media sites are great but can make it difficult to really feel a personal connection. In response, we recently launched several Facebook groups (see below) at the local level. If you live in one of the areas below, there are other risky gene carriers waiting to meet you! If social media isn't your thing, contact us to introduce you to others in your community.
Nothing can make your own journey seem less daunting than helping others in a similar situation. There are so many ways to get involved and have fun at the same time! The first fundraiser was created when a young risky gene carrier was offered a space for an evening. When she looked around in her friend group she found musicians and other talent willing to help. Another carrier who owns a restaurant asked vendors to sponsor a brunch where she educated family and friends on her risky gene status, donating the proceeds to our cause.
If you don't have a risky genes Facebook group in your community, you are welcome to join any of these groups until one is established. If you would like to get involved by administering a group in your community please contact us!
This type of hereditary cancer was discovered decades ago. One would assume governments and the large cancer organizations would have prioritized funding to prevent cancer in the only population in which that is possible. However, these entities tend to focus on post-diagnosis and the larger, spontaneous cancer group. Through the years virtually no programs existed to actively search out prospective risky gene carriers to save their lives. Nor, were there resources available to connect risky gene carriers to each other or encourage them to become involved in their own cause. Seeing there was no time to lose, some of our young risky gene carriers got involved by launching the RISKY GENES AWARENESS PROGRAM.
Program aims are:
Much work has been done since the program launch late 2015, but with up to 80% of all risky gene carriers still unaware they are affected, there is so much more to do. We need skilled volunteers to help create graphic and video elements and/or with a marketing background. We also need enthusiastic volunteers with an interest in fundraising, event management or willing to help spread the word on social media. Of course, we also need funding. Sponsorship opportunities are available and we will gladly accept donations. If you can help in any way, we want to hear from you!
The larger cancer organizations and governments have not funded the hereditary component of the various types of cancer that risky gene carriers are susceptible to proportionately, if at all. If you have risky genes and want to see a brighter future, please support your own cause. Learn more
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