If you are found to be a risky gene carrier, close biological relatives, such as parents, siblings and children may also have inherited risky genes. More distant relatives on that side of the family may also want to be made aware of your status.
Ask your genetic counsellor who you should notify so they can consider genetic testing.
Knowledge is power. If relatives learn they also carry risky genes, it gives them access to screening and possible cancer intervention options. It also provides their current or future biological children with the same opportunities.
For years this condition was framed in a way that created the widespread misperception that only females could be risky gene carriers and develop hereditary cancer. ANYONE, males included, can carry risky genes, develop hereditary cancer as a result, and pass down their risky genes to biological children, although it is more likely for those with a certain family cancer history or ethnic background.
The person you love has received life-changing information that will affect you because of how it affects them, and any children you already have or anticipate for the future. Their body and mental health may change, testing your relationship and adjusting plans. You also need to ensure you have a good support system and empower yourself with information that will help to cope.
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Disclaimer: This website is for educational and informational purposes only and may not be construed as medical advice, nor is this information intended to replace advice offered by medical professionals.
We will be dissolving The Risky Genes Society over the next few months and dispersing all remaining assets as required according to the Alberta Societies Act and Canada Income Tax Act. We wish all those affected by hereditary cancer a future of growing knowledge and awareness of how hereditary cancer can be prevented, detected and treated. All the best in health to those affected with hereditary cancer.
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