Why should I get involved?

This is your cause

Are you a prospective or confirmed risky gene carrier?  Do you love or know someone who has risky genes?  A medical professional working with risky gene carriers?

If you live in a family affected by risky genes, you may have lost one or more family members to hereditary cancer.  You fear for your own life and for the lives of loved ones, especially children.  You may have experienced the anxiety of regular cancer screenings, the trauma of multiple surgeries, fertility loss or suffered other side-effects from treatments. You may have developed hereditary cancer because you didn’t understand the severity of your cancer risk or because you didn’t even know you were a risky gene carrier.

Hereditary cancer is grossly underfunded

Risky genes were discovered in 1995.  Soon after, the health care system responded with medical recommendations to provide early-age cancer screening and prevention options for risky gene carriers. One would assume with these medical recommendations in place, provisions would have been made to educate the medical community so they could identify and treat risky gene carriers.  This did not happen.

One would also assume the larger organizations would have been at the forefront with awareness programs, now that they could actually prevent cancer in a significant portion of the groups whose sole purpose it is for them to serve.  This also did not happen.

Instead, hereditary cancer remained virtually unknown until 2013, when a very public figure, Angelina Jolie, told her story to the press.  In the years since, there has been some progress in the area of research funding, but funding for essential services and programs remains elusive, especially in the area of awareness.

Lack of awareness denies many of us equitable health care, the ability to make life-altering health decisions in a supportive environment, ensures hereditary cancer funding remains minimal and robs us of hope that our children will have better options. It also means countless risky gene carriers will continue to be diagnosed with cancer and die needlessly. Today, there are more than 1 million Canadians estimated to be risky gene carriers but of those 80% still don’t know it!

Help us save lives by spreading awareness

A group of enthusiastic young risky gene carriers decided something had to be done.  The result was the Risky Genes Awareness Program, designed with the express purpose of actively seeking out young prospective carriers to provide them with the tools they need to save their lives.

Learn more

The above commercial and other elements of the program, including this website, were produced through donations and services from caring people like you.  This commercial, starring the founder of the program and an actual risky gene carrier who made tough prevention decisions to save her own life after the death of her sister, is an extremely effective way of spreading the word through social media and with email contacts.  However, to be able to reach the masses we require additional funding to air on networks, cable and streaming tv.  We also need professionals to help design and distribute additional media.

Supporting the Risky Genes Awareness Program is just one of many ways that turning our donations toward your own cause saves lives!

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